National Aboriginal lupus workshop proceedings
Issue: Vol 8 No 4, October 2008 - December 2008
Related to Health Research
The Coalition for Research to Improve Aboriginal Health (CRIAH) in partnership with the Commonwealth Department of Health and Ageing held the National Aboriginal lupus workshop in February 2007 in response to Aboriginal community concern about lupus and its debilitating effects on individuals, families and communities.
The workshop facilitated discussion around the issue of lupus, and has prompted further action to appropriately assist people with this disease. Over 100 people from across Australia attended the day, representing Aboriginal health services, communities and government departments from every State and Territory. The workshop presentations included keynote addresses from specialist physicians in immunology and rheumatology, and presentations from Aboriginal community leaders, lupus sufferers and their families, researchers and policy officers interested in and involved with addressing lupus among Aboriginal and Torres Strait Islander people.
The specific aims of the workshop were to:
- assemble Aboriginal people and consumers, health providers, policy makers and researchers with an interest in lupus among Aboriginal people;
- examine and discuss what is known about the incidence, treatment and care of Aboriginal people with lupus;
- explore ways in which health services, policy makers, researchers and Aboriginal people and consumers could work together to improve our awareness and understanding of how to optimise management and care provided to Aboriginal people with lupus through primary, secondary and tertiary health care providers; and
- explore gaps in Australian research about lupus among Aboriginal people and opportunities for new research and research collaborations.
Proceedings are available from the web page about the workshop both in audio format and in a printable booklet.
- Further information:
- Contact details:
- Nicole Cockayne, Manager, Aboriginal Health Research, The Sax Institute, Level 8, Building 10, 235 Jones St, Ultimo NSW 2007, PO Box 123, Broadway NSW 2007, ph: (02) 9514 5938, website: www.saxinstitute.org.au